Our House of Cards| Disability Style (Part 1)

Living in a House of Cards| Non-Profits, HUD, Medicaid Waivers (Part 1) My friend Debbie Wetzel always said the human service system was a house of cards. As parents of people with severe disabilities, we need many agencies, many people working together to get basic...

Thoughts on First Ed Roberts’ Day

Thanks to everyone who Tweeted, Facebooked (is that a word?) and otherwise shared information about Ed Roberts and his first official memorial day in California The Ed Roberts Campus at Berekley California is open. The campus uses Universal Design and is built for...

Wretches & Jabberers Review| A Jab to the Heart

I’ve been getting questions about Facilitated Communication. In the book Far From the Tree, the author Andrew Solomon interviews Ben Lehr who uses FC. Sue Lehr, of course, is one of the pioneers who works at Syracuse University and is a role model to us all. So,...

The Disability Shuffle: Dancing on a wall | Part 10

photo credit: Mini D The Disability Shuffle: Two steps forward, one step back. OR, One step forward, two steps back…. The frantic drumming of time passing pounds in your ears as you shuffle and twist and beg others to listen and join in your dance of survival....

Should I rent a billboard? Finding roommates | Part 9

photo credit: numberstumper Should I rent a billboard| Medicaid Waiver Roommates Part 9 This is Part 9 in a series of posts about moving my son Aaron, who has the label of autism, from his current residence to the county where we live. If you want the background click...