For anyone who buys gifts for a person with autism or a disability, here is a fun twist on the classic poem which shares some of the reasons it is so difficult to find the perfect gift.
Cindy Waeltermann, is the founder of AutismLink and gives us permission to reprint her poem on behalf of her two children who are adults with autism.
Autism Night Before Christmas
by Cindy Waeltermann
Twas the Night Before Christmas
And all through the house
The creatures were stirring
Yes, even the mouseWe tried melatonin
And gave a hot bath
But the holiday jitters
They always distractThe children were finally
All nestled in bed
When nightmares of terror
Ran through my OWN headDid I get the right gift
The right color
And style
Would there be a tantrum
Or even, maybe, a smile?Our relatives come
But they don’t understand
The pleasure he gets
Just from flapping his hands.“He needs discipline,” they say
“Just a well-needed smack,
You must learn to parent…”
And on goes the attackWe smile and nod
Because we know deep inside
The argument is moot
Let them all take a sideWe know what it’s like
To live with the spectrum
The struggles and triumphs
Achievements, regressions…But what they don’t know
And what they don’t see
Is the joy that we feel
Over simplicityHe said “hello”
He ate something green!
He told his first lie!
He did not cause a scene!He peed on the potty
Who cares if he’s ten,
He stopped saying the same thing
Again and again!Others don’t realize
Just how we can cope
How we bravely hang on
At the end of our ropeBut what they don’t see
Is the joy we can’t hide
When our children with autism
Make the tiniest strideWe may look at others
Without the problems we face
With jealousy, hatred
Or even distaste,But what they don’t know
Nor sometimes do we
Is that children with autism
Bring simplicity.We don’t get excited
Over expensive things
We jump for joy
With the progress work bringsChildren with autism
Try hard every day
That they make us proud
More than words can say.They work even harder
Than you or I
To achieve something small
To reach a star in the skySo to those who don’t get it
Or can’t get a clue
Take a walk in my shoes
And I’ll assure youThat even 10 minutes
Into the walk
You’ll look at me
With respect, even shock.You will realize
What it is I go through
And the next time you judge
I can assure youThat you won’t say a thing
You’ll be quiet and learn,
Like the years that I did
When the tables were turned…….
Thanks to Trish Doerrler, a parent of a child with autism, for sharing this poem on her blog In so many words.
Hope you all have a fantastic Holiday, with lots of precious moments.
Aaron’s Favorite Gifts
This year we are getting Aaron a tape/CD player because Aaron thinks listening to music is an active sport. He loves putting the tapes (yes, tapes) in and out. We can find tapes in used book stores. They are usually pretty cheap, but that is great because then when they only last a couple days, they can be replaced. The hardest part will be to get the staff to understand the batteries are rechargable and should not be thrown out.
Aaron also likes to lick and flip baseball cards. He especially likes the ones with cheerleaders:)
I wish we had a longer list. He really isn’t impressed with new shirts and underwear.
Keep Climbing: Onward and Upward.
All my best,
Mary
Comments:
Which gifts work for your child? especially adults with autism or other disabilities? Are the gifts age-appropriate?