Archive for August, 2012
“Representative Payee”| SSI, SSDI
When Aaron, our son with autism and a developmental disability, moved into a house with another man, we became his legal guardian.
It was the only way to protect Aaron legally. It was the right thing to do.
One of the first decisions became who was in charge of finances–the individual, the residential provider, or the guardian.
Certainly if your son or daughter is capable, that is the first choice. Remember, the individual can get support on their ISP (Individual Service Plan) to help.
The Residential Provider
If you are the parent of an adult with autism or other disability who is not able to handle their own finances, then this service can be written into the ISP (Individualized Service Plan) and handled by the agency or residential provider.
The residential provider cannot charge for this service, but it is one of the services in the Individual Option Medicaid Waiver.
For 13 years, my husband and I let the residential provider be the SSI and SSDI “representative payee” and handle his finances.
We added checks and balances:
In Aaron’s ISP, the company would send us monthly statements by email and the County Service Coordinator checked the Residential Provider’s records, so it worked great.
After all, as parents we know we won’t live forever, why not put the financial system in place while we can still make sure it works.
Checks and balances plus it was less work for us–YEA!
Guardians become “Representative Payee”
Last month we fired our residential provider. This made things tricky so I decided to become the “representative payee” myself.
Here is what I’ve learned:
How do Guardians become “Representative Payee” for SSI, SSDI?
Go to your local Social Security Office, you cannot do this online. Allow at least an hour.
Your child’s Social Security Card
Your Social Security Card
Your valid Driver’s License with current address
The bank account number and routing number for the automatic deposit.
You will need to have a face to face interview.
Make sure the agent changes the information for both SSI and SSDI if that is appropriate. They are two separate systems.
You will be given a contact person for your future needs.
You can call 1-800-772-1213 and ask for an “agent,” in addition they have recorded information on the responsibilities and frequently asked questions about “representative payee.”
Timelines are based on the first of the month
i.e. Automatic social security deposits are on the first and the third of the month.
It will take a month or so to get the deposit information transferred.
Keep Climbing: Onward and Upward
All my best,
Sept. 22, 2010 The US House of Representatives has unanimously approved a bill to replace the term “mental retardation” and “mentally retarded” with “intellectual disability” and “individual with an intellectual disability.” The Senate previously passed this bill. President Obama signed the legislation into law.
This is a triumph for all of us, but especially for people with disabilities, their parents and families who have carried the burden of the word retarded.
Tomorrow I want to talk about the role of parents and advocates in making a difference in our world and getting legislation passed. Rosa’s bill is named after a young woman with Down syndrome, you can bet her mom was involved.
But today I just wanted to show what a great press release and call to action looks like. So no need for phone calls–the bill is passed.
What are the components of this press release that would make you want to take action? no action?
Just for transparency, I support this bill and have been a member of Aut-Com and followed Our Children Left Behind almost since they began.
Keep Climbing: Onward and Upward
All the best,
Here is some information from the advocacy group, “Our Children Left Behind.” Posted by: “Alpy2@aol.com” Tue Sep 21, 2010 7:57 pm (PDT)
Hi, all! This is from Jessica Butler, long time advocate and mom of a child with a disability. Legislation has passed the US Senate (“Rosa’s Law”) that would eliminate the use of the “R” word (“retarded”) with the less loaded term of “intellectual disability.” We believe this change would help eliminate the stigma currently associated with the “R” word, and this law would cost NO money to implement.
If you agree, please make a quick call to your U.S. (federal)
representative (see instructions below), and please share – thanks!
(The Senate has passed this bill but the US House still needs to – if it’s not passed before the end of the legislative term, the process will have to start all over again from the beginning in the next term.)
FROM JESSICA BUTLER – PERMISSION TO FORWARD/REPOST FREELY:
As the year winds down, we’ve all talked and debated many important policy matters. You’ve heard a lot about restraint/ seclusion/aversives, and you will be hearing more about legislation regarding these dangerous techniques. We’ve all called Congress about recovering expert witness fees, Buckhannon, unlevel playing fields, and woefully inadequate educations that do little to prepare children with disabilities to succeed (much less go to college or earn a living).
But as you sip your morning coffee, tea, or Mountain Dew, I’d like to try to convince you to make one more call to Congress– a short call for human dignity. The Senate has passed Rosa’s law (S.2781), a bill to replace “mental retardation” in our federal laws with “intellectual disability.” Now, it’s time to ask your Representative to do the same.
Maybe this isn’t as big a deal as all the other kinds of legislation. But as WE know, “retarded” is used as a slur, demeaning and denigrating to 6 million adults and children in America. The stereotypes associated with the “R” word connote the slamming door of “can’t” more than the hopefulness of “can” which encourages people to teach children with intellectual disabilities to succeed. Even some of our archaic restraint/seclusion practices are premised on outdated stereotypes that children with intellectual disabilities cannot understand anything else.
Eliminating the “R word” may not cure the stereotypes, but it will help bring society closer to realizing that people with intellectual disabilities are part of all of us. Of course, it’s hard to eliminate it when our core disabilities laws use it. Nearly 1/2 million children with IEPs are categorized as “mentally retarded.”
S.2781, Rosa’s Law, would change all of this. It will replace “mental retardation” and “mentally retarded” with “intellectual disability” in our federal laws. These include the Individuals with Disabilities Education Act, Elementary and Secondary Education Act (the law formerly known as No Child Left Behind), Rehabilitation Act, Public Health Service Act, Health Research and Health Services Amendments and a number of other health and disability laws. S. 2781 will also update federal regulations.
Some people think this bill is silly or wasteful; many of us do not.
It’s about dignity for people with intellectual disabilities.
Rosa’s Law will not impact services, rights or educational opportunities for people with intellectual disabilities. It just replaces one phrase with another; everything else stays the same. It will not cost any money. Federal Regulations and Statute Prints will be updated on the same schedule they always are. The bill will not force states to change their own laws if they do not want to. Rosa’s Law is a bipartisan bill, it was cosponsored by Senators Mike Enzi (R-WY), Richard Burr (R-NC), Barbara Boxer (D-CA), Barbara Mikulski (D-MD), and 40 other Senators from both parties. The Senate passed the bill last month and sent it to the House.
But now the legislative session is winding down. To make S. 2781 a
federal law, the House of Representatives must pass it. If the House does not, we start all over again next year…..from the very beginning.
INSTRUCTIONS FOR CALLING YOUR REPRESENTATIVE. Please take 5 minutes and call your Congressional Representative. Ask him/her to support S.2781. Dial 202-224-3121 (TTY 202-225-1904). Ask for the aide who handles disability or health care. If you get voicemail, please leave a detailed message. You can also find direct dial numbers on your Representative’s webpage at _http://www.house.gov_ (http://www.house.gov/) . If you do not know who your Congressional Representative is, go to _http://www.house.gov_ (http://www.house.gov/) and put your zip code into the box in the upper left corner. (You usually only need your five digit zip code, even though it asks for 9.)
It is much much better to make a call, because Congress is so busy in the final weeks that reading email will be delayed. If you cannot call due to disability or other severe constraints, please send an email but perhaps ask a friend to also make a call. Email can be sent through _http://www.house.gov/writerep_ (http://www.house.gov/writerep) .
Everyone should call your own Representative. But it’s particularly
important to call your Representative if he/she is on the House Education and Labor Committee (see _http://edlabor.house.gov/about/members/_ (http://edlabor.house.gov/about/members/) for a list of members) or House Energy and Commerce Committee ((for a list of members, go to _http://bit.ly/dfws6B_ (http://bit.ly/dfws6B) or go to _http://energycommerce.house.gov/_ (http://energycommerce.house.gov/) and click on About and then Members) or in the House leadership. Energy & Commerce handles the federal health laws, which Rosa’s bill will also update. If your Representative is on Energy & Commerce, please ask for the Energy & Commerce aide. Tell this aide this is why the Committee has the bill and ask them to support it. Both committees must approve the bill to send it on to the full House.
Perhaps Rosa’s Law is a small change, but it is one that will say a lot about our national cultural attitude toward people with intellectual disabilities. Updating our federal laws will not eliminate stereotyping or low expectations for children with intellectual disabilities, but it is a step in the right direction. It’s a way to make sure America’s laws stand up for human dignity rather than archaic terms.
More info on the web: S.2781, Rosa’s Law in full:
Statement of Senator Mikulski (D-MD), Sen. Harkin (D-IA) and Sen. Enzi (R-WY) upon introducing the bill: http://mikulski.senate.gov/record.cfm?id=325272_ (http://mikulski.senate.gov/record.cfm?id=325272)
I wish you a great week. I hope you’ll join me in taking 5 minutes out to call your Congressional Representative and ask him/her to pass S.2781, Rosa’s Law. It’s a simple bill and an easy call to make. You have all you need above. If you agree with me, make a call and send this message on to 5 friends (or 20 or 50).
It’s a step for Human Dignity.
Congressional Affairs Coordinator
Autism National Committee (_www.autcom.org_ (http://www.autcom.org/) )
Former Chair, COPAA Board of Directors (2007-08)
permission to forward is freely granted.
Sandy, Illinois (email@example.com)
Our Children Left Behind (http://www.ourchildrenleftbehind.com)
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