HUD Tips for Parents and Guardians of People with Disabilities| Part 3
Disclaimer: I am NOT an expert on HUD. I am sharing my personal experience. Please check with your local HUD.gov office.
In the last two posts, I’ve been documenting our journey toward moving Aaron, our son with the label of autism and developmental disabilities, to a new county with his HUD “housing choice voucher program” and Medicaid Waiver.
Here’s the recent status report:
1. On June 29th, Tom (my husband) and I met with two administrators from the residential provider and toured a prospective house for Aaron, recommended by the County Board of Developmental Disabilities. (This is our third different home to visit; the first two roommates were not good matches.)
The two administrators, residential providers, seemed competent and ask the right questions. The one administrator had a sister with a disability.
We shared Aaron’s ISP (Individualized Service Plan) and talked about Aaron’s needs.
Of course, the critical deciding factor will be Aaron’s compatibility with the other two roommates.
The ranch house was only a mile from where we lived. Aaron’s bedroom and most of the house were structurally sound, but there were some issues with the bathrooms needing to be remodeled, a sunken living room (which would be dangerous for Aaron who has a movement disorder and lots of balance issues) and the biggie, would the private landlord take a HUD voucher?
2. We filed with HUD for a 30 day notice to PORT to another county on June 30th. (Had to be in by the 1st of the month.)
3. We signed the physical paperwork with HUD (and the wonderful counselor) on July 5th.
4. Almost immediately, we got a nasty call from Aaron’s current residential company because they were so “shocked” we were unhappy. (Duh, if they had listened at even one of the meetings, they would have known this, clueless is not even close.)
5. Paperwork arrived in new county on July 5th. I called to set up an appointment only to be told they would send me a letter, and they set the appointments–not the consumer. (Okay, power struggle). Plus, the office was getting new carpet so the woman in charge wouldn’t be able to call me back. (Power power struggle). Lots of sighs at our house.
6. On July 5th, Aaron, Tom and I went to revisit the proposed home. We had a cookout with about 20 people including the two roommates and their families. The head of the residential company went into labor and couldn’t attend. The case worker who is in charge of this house (everyone in the house has the same caseworker) also couldn’t attend because she was on vacation until July 12.
7. We’ve been waiting and waiting… so the clock is ticking…the sand is shifting through the hourglass, the … every other cliché you can think of…we only have two more weeks left in July and the 30 days will be up.
Wonder if there is any loophole in HUD regulations that says, “The thirty day notice is for thirty days, unless the staff person is on vacation, having a baby, or is getting new carpeting in the office.”
What are the chances Aaron will find great roommates and happiness and quality care?
Another month from now will I be sending you all “HUD Tips… Part 25”?
“Will there be enough cliche pictures for all these parts?”
Can’t wait to tell you what happens next.
Please share your thoughts. Do you have any tips for housing for people with disabilities? If you rented houses, would you consider accepting the HUD rent subsidy voucher? What other cliches can I use? (Up the creek, cat up the tree… “Like the sands of an hourglass, so are the days of our lives….???????)
Keep Climbing: Onward and Upward,
All my best,