Dream Plan for Aaron: 2016 (Part 4)

“If you don’t design your own life plan, chances are you’ll fall into someone else’s plan. And guess what they have planned for you? Not much.” – Jim Rohn I will soon be celebrating my 66th Birthday. I used to think 66 was old. Now I just think 66 is experienced with...

Test Questions| Segregation or Inclusion?

Test Questions | Segregation or Inclusion? Friends and family members send me newspaper stories about people with disabilities. Some stories make me shout with joy and others make me want to cry and give up. Often my friends can’t figure out which ones are which. For...

Building Community: Wheelchair Becky vs. Flat Stanley

Clueless Barbie Some of the major stores are already advertising their holiday toy sales. This made me think of Barbie and her friends. Some say the Barbie doll was the most influential icon of late 20th century American culture. In fact, she rated no. 43 on the 101...

Our House of Cards|Disability Style (Part 3)

Our House of Cards| Disability Style (Part 3) Originally published in 2011 Hey, Researchers… In April, when my son Aaron celebrated his 13th year of living away from home. He was 36 years old so that would be “normal,” except that Aaron has the...

Our House of Cards|Disability Style (Part 2)

Our House of Cards|Disability Style (Part 2) Introduction: I am going to try to describe what happened to Aaron, my son, when he was 36 years old. Aaron has the labels of autism and developmental disabilities. It is a complicated story. In the comments, let me know if...

Our House of Cards| Disability Style (Part 1)

Living in a House of Cards| Non-Profits, HUD, Medicaid Waivers (Part 1) My friend Debbie Wetzel always said the human service system was a house of cards. As parents of people with severe disabilities, we need many agencies, many people working together to get basic...