Bob Perske| The Song of Joe Arridy

I’m Memory of Bob Perske, a real hero to families and people with disabilities. Bob Perske is a pioneer, a storyteller and a “Group Man.” In his book, Circle of Friends, he tells the story of vulnerable people building circles of support. Bob wrote the following...

Love–NOT Labels: Rosa’s Law

Love–NOT Labels With families, “Love” is all that matters–no matter what, unconditionally. The love we feel for our child, our baby, our sister, brother, son, daughter can never be replaced by a medical or psychological term some professional...

Our House of Cards|Disability Style (Part 2)

Our House of Cards|Disability Style (Part 2) Introduction: I am going to try to describe what happened to Aaron, my son, when he was 36 years old. Aaron has the labels of autism and developmental disabilities. It is a complicated story. In the comments, let me know if...

Our House of Cards| Disability Style (Part 1)

Living in a House of Cards| Non-Profits, HUD, Medicaid Waivers (Part 1) My friend Debbie Wetzel always said the human service system was a house of cards. As parents of people with severe disabilities, we need many agencies, many people working together to get basic...

Building Community | People First Language

People First Controversy Background: There is controversy in the disability community about the use of People First or Person First language. I’ve written several posts about People First language: *Rosa’s Law, *Stigma and segregation caused by labels like...