Our House of Cards| Disability Style (Part 1)

Living in a House of Cards| Non-Profits, HUD, Medicaid Waivers (Part 1) My friend Debbie Wetzel always said the human service system was a house of cards. As parents of people with severe disabilities, we need many agencies, many people working together to get basic...

Ed Roberts’ Day| “Be Extraordinary”

In my class, “Introduction to Exceptionalities,” we read an article by Paul Longmore about the social construction of disabilities. The point being that the traditional “medical paradigm” points the disability finger at the person– they...

Wretches & Jabberers Review| A Jab to the Heart

I’ve been getting questions about Facilitated Communication. In the book Far From the Tree, the author Andrew Solomon interviews Ben Lehr who uses FC. Sue Lehr, of course, is one of the pioneers who works at Syracuse University and is a role model to us all. So,...

What do you do?|The Case of the Lourdes Water

photo credit: Lawrence OP What do you do when someone wants to cure your child with Lourdes Water or the “laying on of the hands”? True Story “Where’s Aaron?” my mother asked while I was still putting the phone to my ear. I explained Aaron was at his house and we...